Voici une sélection d'articles sur le thème de l'évaluation de la qualité des soins par les patients, la participation des patients à leur sécurité.
Van Dael J, Reader TW, Gillespie A, et al Learning from complaints in healthcare: a realist review of academic literature, policy evidence and front-line insights BMJ Quality & Safety Published Online First: 04 February 2020. doi: 10.1136/bmjqs-2019-009704
Moore N, Detering KM, Low T, et al Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients: an Australian interview study BMJ Open 2019;9:e032638. doi:10.1136/bmjopen-2019-032638
Iqbal, M. P., Manias, E., Mimmo, L., Mears, S., Jack, B., Hay, L., & Harrison, R. (2020). Clinicians’ Experience of Providing Care: A Rapid Review. BMC Health Services Research, 2020, in press
Glickman, S. W., Mehrotra, A., Shea, C. M., Mayer, C., Strickler, J., Pabers, S., ... & Pines, J. M. (2020). A patient reported approach to identify medical errors and improve patient safety in the emergency department. Journal of patient safety, 16(3), 211-215.
Wray, J., & Oldham, G. (2020). Using parent-reported experience measures as quality improvement tools in paediatric cardiothoracic services: making it happen. International Journal for Quality in Health Care, 32(2), 140-148.
Raberus A., Holmström I., Galvin K., Sundler A., The nature of patient complaints: a resource for healthcare improvements, International Journal for Quality in Health Care, Volume 31, Issue 7, August 2019, Pages 556–562,
De Bienassis, K., Kristensen, S., Hewlett, E., Roe, D., Mainz, J., & Klazinga, N. (2021). Patient-reported indicators in mental health care : towards international standards among members of the OECD. International Journal for Quality in Health Care, 33(1), mzab020.
Naik AD, Catic A Achieving patient priorities: an alternative to patient-reported outcome measures (PROMs) for promoting patient-centred care BMJ Quality & Safety 2021;30:92-95.
Thuong C., Calmus S., Legris C., Morin S., May-Michelangeli L.
Thuong C, Calmus S, Legris C, Morin S, May-Michelangeli L.
Mounce LT, Salema N E, Gangannagaripalli J, Ricci-Cabello I, Avery AJ, Kadam UT & Valderas JM (2022). Development of 2 short patient-report questionnaires of patient safety in primary care. Journal of Patient Safety, 18(3), 161-170
Goekcimen, K., Schwendimann, R., Pfeiffer, Y., Mohr, G., Jaeger, C., & Mueller, S. (2023). Addressing Patient Safety Hazards Using Critical Incident Reporting in Hospitals: A Systematic Review. Journal of Patient Safety, 19(1), e1-e8.
Woodier, N., Burnett, C., & Moppett, I. (2023). The Value of Learning From Near Misses to Improve Patient Safety: A Scoping Review. Journal of Patient Safety, 19(1), 42-47.
Vach W., Jakob M., Luta G., The double use of PROMs to improve patient–provider communication and to compare providers: a potential conflict ? International Journal for Quality in Health Care, Volume 35, Issue 1, 2023, mzad002.
Abdalla R., Pavlova M., & Groot W. (2023). Association of patient experience and the quality of hospital care. International Journal for Quality in Health Care, 35(3), mzad047.
Egberts, T. Smulders M., de Koning, F., Meyboom, R., Leufkens, H. Can adverse drug reactions be detected earlier? A comparison of reports by patients and professionals, BMJ, 1996, 313:530-531
McGuckin M, Waterman R, Storr IJ, Bowler IC, Ashby M, Topley K et al. Evaluation of a patient-empowering hand hygiene programme in the UK. J Hosp Infect 2001; 48(3):222-227.
Wensing, M., Elwyn, G. Research on patients’views in the evaluation and improvement of quality of care, Qual Saf Health Care 2002, 11: 153-157
Vincent CA, Coulter A. Patient safety: what about the patient? Qual Saf Health Care 2002; 11(1):76-80.
Weingart SN, Toth M, Eneman J, Aronson MD, Sands DZ, Ship AN et al. Lessons from a patient partnership intervention to prevent adverse drug events. Int J Qual Health Care 2004; 16(6):499-507
Weingart, S., Pagovitch, O., Sands, D., Li, J., Aronson, M., Davis, R., Bates, D., Phillips, R., What Can Hospitalized Patients Tell Us About Adverse Events? Learning from Patient-Reported Incidents, J Gen Int Med, 2005, 20: 830-36
Davies E. Cleary P. D. Hearing the Patient's Voice? Factors Affecting the Use of Patient Survey Data in Quality Improvement. Qual Saf Health Care 2005; 14(6):428–32.
Burroughs TE, Waterman AD, Gallagher TH, Waterman B, Adams D, Jeffe DB et al. Patient concerns about medical errors in emergency departments. Acad Emerg Med 2005; 12(1):57-64.
Reeves R., Seccombe R., Do patient surveys work? The influence of a national survey programme on local quality-improvement initiatives, Qual Saf Health Care. 2008 Dec;17(6):437-41.
IOM, What can you do to avoir error, IOM, 2006
AFSSAPS, Partenariat Afssaps/Associations de patients et de consommateurs :
Lancement d'une étude sur les déclarations des événements indésirables par les patients, communiqué de presse, 7 juin 2006
Safran D. G., Karp M., Coltin K. Measuring Patients' Experiences with Individual Primary Care Physicians: Results of a Statewide Demonstration Project. J Gen Int Med 2006 21(1):13-21.
Waterman AD, Gallagher TH, Garbutt J, Waterman BM, Fraser V, Burroughs TE. Brief report: Hospitalized patients' attitudes about and participation in error prevention. J Gen Intern Med 2006; 21(4):367-370.
Burroughs TE, Waterman AD, Gallagher TH, Waterman B, Jeffe DB, Dunagan WC et al. Patients' concerns about medical errors during hospitalization. Jt Comm J Qual Patient Saf 2007; 33(1):5-14.
Unruh KT, Pratt W. Patients as actors: the patient's role in detecting, preventing, and recovering from medical errors. Int J Med Inform 2007; 76 Suppl 1:S236-S244.
Davis R., M Koutantji M., Vincent C. How willing are patients to question healthcare staff on issues related to the quality and safety of their healthcare? An exploratory study Qual Saf Health Care 2008;17:90-96
Weissman J. , Schneider E., Weingart S., Epstein, David-Kasdan, Sandra Feibelmann, Annas CJD; Nancy Ridley, Kirle L., Gatsonis, C..Comparing Patient-Reported Hospital Adverse Events with Medical
Record Review: Do Patients Know Something That Hospitals Do Not? Ann Intern Med. 2008;149:100-108
Schwappach DL. Engaging Patients as Vigilant Partners in Safety: A Systematic Review. Med Care Res Rev 2009.
Mira J., Nebot C., Lorenzo S., Pérez-Jover V. Patient report on information given, consultation time and safety in primary care, Qual Saf Health Care 2010 19: 1-4
King A., Daniels J., Lim J., et al, Time to listen : a review of methods to solicit patients’ report of adverse events, Qual Saf Health Care 2010 19: 148-157
Enwistle V., MCCaughan D., Watt I et al, Speaking up about safety concerns: multisetting qualitative studies of patients’views and experiences, Qual Saf Health Care 2010 19: 1-7
Longtin Y., Sax H., Leape L., Sheridan S., Donaldon L., Pitet D. Patient Participation: Current Knowledge and Applicability to Patient Safety, Mayo Clin Proc. 2010;85(1):53-62
Weingart S., Zhu J., Chiappetta L., Stuver S., Schenider E., Epstein A., Kasdan J., Annas C., Fowler F., Weissman J., Hospitalized patients’ participation and its impact on quality of care and patient safety, Int. Journal for Quality in Health CareVolume23, Issue3:. 269-277.
Davis R., Sevdalis N., Vincent C. Patient involvement in patient safety: How willing are patients to participate? BMJ Qual Saf 2011;20:108e114.
Smolders K., ouden A., Nugteren W., Van der Wal G., G. Does public disclosure of quality indicators influence hospitals’ inclination to enhance results?, IJQHC 2012; Volume 24, Number 2: pp. 129–134
Welch J. As She Lay Dying: How I Fought To Stop Medical Errors From Killing My MOm Health Affairs, 31, no.12 (2012):2817-2820
Patient safety Strategy, Accreditation Canada, plan d’action 2012-2014, 2012
Doyle, Cathal, Laura Lennox, et Derek Bell , A Systematic Review of Evidence on the Links Between Patient Experience and Clinical Safety and Effectiveness BMJ Open 3, 1, 2013
Involving patients in improving safety, Health Fondation (pas d’auteurs) report, January 2013, en libre accès internet
Katz S., Hawley S., The value of sharing treatment decision making with patients. Expecting too much? JAMA, 2013, 310, 15, 1559-60
Berger Z., Flickinger T., Pfoh E., Martinez K., Dy S. Promoting Engagement by Patients and Families to Reduce Adverse Events in Acute Care Settings: A Systematic Review. BMJ Quality & Safety (13 December 2013, published January 2014): bmjqs‑2012‑001769.
Black N., Varaganum M., Hutchings A. Relationship between Patient Reported Experience (PREMs) and Patient Reported Outcomes (PROMs) in Elective Surgery BMJ Quality & Safety 23, no 7 (7 janvier 2014): 534‑542.
Reader, T., Gillespie A., Roberts J. Patient Complaints in Healthcare Systems: A Systematic Review and Coding Taxonomy . BMJ Quality & Safety 23, no 8 (8 janvier 2014): 678‑89.
Grande D., Mitra N., Shah A., Wan F., Asch D., The Importance of Purpose: Moving Beyond Consent in the Societal Use of Personal Health Information Consent for Secondary Use of Health Information Ann Intern Med. 2014;161(12):855-862. doi:10.7326/M14-1118
Lenzen S. , Ramon Daniëls R. , van Bokhoven M. ,van der Weijden T, Beurskens A., Setting goals in chronic care: Shared decision making as self-management support by the family physician, European Journal of General Practice, 2014; Early Online: 1–7
Bayer R., Santelli J., Klitzman R. New Challenges for Electronic Health Records : Confidentiality and Access to Sensitive Health Information About Parents and Adolescents JAMA. 2015;313(1):29-30
Shieh D., Unintended Side Effects: Arbitration and the Deterrence of Medical Error | NYU Law Review November 2014 Issue: Volume 89, Number 5
Lawton R, O’Hara JK, Sheard L, Reynolds C., Cocks K., Armitage H., Wright J Can staff and patient perspectives on hospital safety predict harm-free care? An analysis of staff and patient survey data and routinely collected outcomes. BMJ Qual Saf Published Online First: doi:10.1136/bmjqs-2014-003691
Bjertnaes B., Deilkas E., Skudal K., Iversen H., Bjerkan AM, The association between patient-reported incidents in hospitals and estimated rates of patients harm, IJQSHC, 2015, 27(&) 26-30
Meyer A., Singh H., Graber M.. Evaluation of Outcomes From a National Patient-Initiated Second-Opinion Program . The American Journal of Medicine 0, no 0. Consulté le 7 juillet 2015
Folcarelli PH, Sands KEF, Sokol-Hessner L, Emotional harm from disrespect: the neglected preventable harmBMJ Qual Saf Published Online First:July 2015 doi:10.1136/ bmjqs-2015-004034
Lang S., Velasco Garrido M., Heintze C.. Patients’ views of adverse events in primary and ambulatory care: a systematic review to assess methods and the content of what patients consider to be adverse events BMC Family Practice 17 (2016): 6.
Bell, S., Mejilla R., Anselmo M., Darer J., Elmore J., Leveille S., Ngo L., Ralston J., Delbanco T., Walker J.. When Doctors Share Visit Notes with Patients: A Study of Patient and Doctor Perceptions of Documentation Errors, Safety Opportunities and the Patient–doctor Relationship BMJ Quality & Safety, 18 mai 2016, bmjqs-2015-004697.
AHRQ: http://www.ahrq.gov/professionals/quality-patient-safety/patient-family-engagement/pfeprimarycare/casestudies.html
Lawton R., O’Hara J., Sheard L., Armitage G., Coks K., Buckley H., Corbacho B., Reynolds C., Marsh C., Moore
S., Watt I., Wright J. Can patient
involvement improve patient safety? A cluster randomised control trial of the
Patient Reporting and Action for a Safe Environment (PRASE) intervention BMJ
Qual Saf 2017;0:1–10.
Participatory approaches to evaluating integrated care: the vital role for client inclusion and participation Sunderji N, Ion A, Lin E, et al. BMJ Qual Saf Published Online First doi:10.1136/bmjqs-2017-006604
Weingart S., Weissman J., Zimmer K., Giannini R., Quigley D., Hunter L., Ridgely S., Schneider E. Implementation and evaluation of a prototype consumer reporting system for patient safety events International Journal for Quality in Health Care, Volume 29, Issue 4, 1 August 2017, Pages 521–526, https://doi.org/10.1093/intqhc/mzx060
Rotenstein L., Huckman R., Wagle N. Making Patients and Doctors Happier — The Potential of Patient-Reported Outcomes N Engl J Med 2017; 377:1211-1213, September 28, 2017, DOI: 10.1056/NEJMp1708084
Ellwood, P. M. (1988). Outcomes management: a technology of patient experience New England Journal of Medicine, 318(23), 1549-1556.
Berwick, D. M. (1989). Continuous improvement as an ideal in health care. New. Eng. J. Med, 1989, 53-7
Tarlov AR, Ware JE, Greenfield S, Nelson EC, Perrin E, Zubkoff M. The Medical Outcomes Study : An Application of Methods for Monitoring the Results of Medical Care. JAMA. 1989;262(7):925–930. doi:10.1001/jama.1989.03430070073033
Epstein AM, The outcomes movement : will it get us where we want to go ?
New Engl. J. Med. 323:266 270,1990
Eisen, S. V., Grob, M. C., & Dill, D. L. (1991). Outcome measurement: Tapping the patient's perspective. In S. M. Mirin, J. T. Gossett, & M. C. Grob (Eds.), Psychiatric treatment: Advances in outcome research (pp. 213-235). Arlington, VA, US: American Psychiatric Association.
Wilson, I. B., & Cleary, P. D. (1995). Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. Jama, 273(1), 59-65.
Smith, G. R., Fischer, E. P., Nordquist, C. R., Mosley, C. L., & Ledbetter, N. S. (1997). Implementing outcomes management systems in mental health settings. Psychiatric Services, 48(3), 364-368.
Mead, N., & Bower, P. (2002). Patient-centred consultations and outcomes in primary care: a review of the literature. Patient education and counseling, 48(1), 51-61.
Marshall, S., Haywood, K., & Fitzpatrick, R. (2006). Impact of patient‐reported outcome measures on routine practice: a structured review. Journal of evaluation in clinical practice, 12(5), 559-568.
Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., ... & Rose, M. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical care, 45(5 Suppl 1), S3
Gwaltney C., Shields A., Shiffman S. Equivalence of Electronic and Paper-and-Pencil Administration of Patient-Reported Outcome Measures: A Meta-Analytic Review, Value in Health, 2, 2008, 322-33
Valderas, J.M., Kotzeva, A., Espallargues, M. et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature Qual Life Res (2008) 17: 179.
Jenkinson, C., Gibbons, E., & Fitzpatrick, R. (2009). A structured review of patient-reported outcome measures (PROMs) for stroke. University of Oxford, Medical Science Division: Oxford.
Porter, M. E. (2009). A strategy for health care reform—toward a value-based system. New England Journal of Medicine, 361(2), 109-112.
Porter, M. E. (2010). What is value in health care? New England Journal of Medicine, 363(26), 2477-2481.
Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., ... & Cook, K. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of clinical epidemiology, 63(11), 1179-1194.
Dawson, J., Doll, H., Fitzpatrick, R., Jenkinson, C., & Carr, A. J. (2010). The routine use of patient reported outcome measures in healthcare settings. Bmj, 340, c186
Neuburger J, Cromwell DA, Hutchings A, et al Funnel plots for comparing provider performance based on patient-reported outcome measures BMJ Qual Saf 2011;20:1020-1026.
Bickman, L., Kelley, S. D., Breda, C., de Andrade, A. R., & Riemer, M. (2011). Effects of routine feedback to clinicians on mental health outcomes of youths: Results of a randomized trial. Psychiatric Services, 62(12), 1423-1429.
Parkin D, Devlin NJ Using health status to measure NHS performance: casting light in dark places BMJ Qual Saf 2012;21:355-356.
Staniszewska, S., Haywood, K. L., Brett, J., & Tutton, L. (2012). Patient and public involvement in patient-reported outcome measures. The Patient-Patient-Centered Outcomes Research, 5(2), 79-87.
Papanicolas, I., Cylus, J., & Smith, P. C. (2013). An analysis of survey data from eleven countries finds that ‘satisfaction’with health system performance means many things. Health Affairs, 32(4), 734-742.
Black, N. (2013). Patient reported outcome measures could help transform healthcare. Bmj, 346, f167.
Weldring, T., & Smith, S. M. Patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs) Health Serv Insights. 2013 Aug; 6: 61–8. doi: 10.4137/HSI. S11093.
Boyce, M.B. & Browne, J.P. (2013). Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Quality Life Research 22, 2265-2278.
Boyce MB, Browne JP, Greenhalgh J The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research BMJ Qual Saf 2014;23:508-518.
Greaves F, Jha AK Quality and the curate's egg BMJ Qual Saf 2014;23:525-527.
Coulter, A., Locock, L., Ziebland, S., & Calabrese, J. (2014). Collecting data on patient experience is not enough: they must be used to improve care. BMJ (Clinical research ed.), 348(mar26 1), g2225-g2225.
Wolpert M. Uses and Abuses of Patient Reported Outcome Measures (PROMs): Potential Iatrogenic Impact of PROMs Implementation and How It Can Be Mitigated. Administration and Policy in Mental Health. 2014;41(2):141-145. doi:10.1007/s10488-013-0509-1.
Worth, A., Hammersley, V., Knibb, R., Flokstra-de-Blok, B., DunnGalvin, A., Walker, S., ... & Sheikh, A. (2014). Patient-reported outcome measures for asthma: a systematic review. NPJ primary care respiratory medicine, 24, 14020.
Antunes, B., Harding, R. & Higginson, I.J. (2014). Implementing patient-reported outcome measures in palliative care clinical practice: a systematic review of facilitators and barriers. Palliative Medicine 28 (2) 158-175.
Kotronoulas, G., Kearney, N., Maguire, R., Harrow, A., Di Domenico, D., Croy, S., & MacGillivray, S. (2014). What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials. Journal of clinical oncology, 32(14), 1480-1510
Nilsson E, Orwelius L, Kristenson M. Patient-reported outcomes in the Swedish National Quality Registers. J Int Med 2015;279:141–53. 10.1111/joim.12409
Varagunam M, Hutchings A, Black N Do patient-reported outcomes offer a more sensitive method for comparing the outcomes of consultants than mortality? A multilevel analysis of routine data BMJ Qual Saf 2015;24:195-202.
Verma R., Overview : What are PROMS and PREMS, PPT ACI NSW Agency for Clinical Innovation, 2015
D. Howell, S. Molloy, K. Wilkinson, E. Green, K. Orchard, K. Wang, J. Liberty; Patient-reported outcomes in routine cancer clinical practice: a scoping review of use, impact on health outcomes, and implementation factors, Annals of Oncology, Volume 26, Issue 9, 1 September 2015, Pages 1846–1858,
Kendrick, T., El‐Gohary, M., Stuart, B., Gilbody, S., Churchill, R., Aiken, L., ... & Moore, M. (2016). Routine use of patient reported outcome measures (PROMs) for improving treatment of common mental health disorders in adults. The Cochrane Library.
Williams K, Sansoni J, Morris D, Grootemaat P and Thompson C, Patient-reported outcome measures: Literature review. Sydney:
ACSQHC; 2016
Singletary B., Patel N., Heslin M. Patient Perceptions About Their Physician in 2 WordsThe Good, the Bad, and the Ugly JAMA Surg. 2017;152(12):1169-1170. doi:10.1001/jamasurg.2017.3851
L. Y. Yang, D. S. Manhas, A. F. Howard and R. A. Olson, Patient-reported outcome use in oncology: a systematic review of the impact on patient-clinician communication, Supportive Care in Cancer, 26, 1, (41), (2018).
Dainty KN, Seaton B, Laupacis A, Schull M., Vaillancourt S.A qualitative study of emergency physicians’ perspectives on PROMS in the emergency department BMJ Qual Saf 2017;26:714-721.
Van de Ree, C. L. P., Ploegsma, K., Kanters, T. A., Roukema, J. A., De Jongh, M. A. C., & Gosens, T. (2017). Care-related Quality of Life of informal caregivers of the elderly after a hip fracture. Journal of Patient-Reported Outcomes, 2(1), 23. http://doi.org/10.1186/s41687-018-0048-3
McHorney, C. A., Bensink, M. E., Burke, L. B., Belozeroff, V., & Gwaltney, C. (2017). Development and psychometric validation of the Nausea/Vomiting Symptom Assessment patient-reported outcome (PRO) instrument for adults with secondary hyperparathyroidism. Journal of patient-reported outcomes, 2(1), 6.
Klazinga, N. S., & Fujisawa, R. (2017). Measuring patient experiences (PREMS): Progress made by the OECD and its member countries between 2006 and 2016. OECD Health Working Papers, (102), 0_1-59.
Kingsley, C., & Patel, S. (2017). Patient-reported outcome measures and patient-reported experience
measures. Bja Education, 17(4), 137-144
Hanbury, A. (2017). Identifying barriers to the implementation of patient-reported outcome measures using a theory-based approach. European Journal for Person Centered Healthcare, 5(1), 35-44
LeBlanc, T. W., & Abernethy, A. P. (2017). Patient-reported outcomes in cancer care—hearing the patient voice at greater volume. Nature Reviews Clinical Oncology, 14(12), 763.
Papanicolas, I., Figueroa, J. F., Orav, E. J., & Jha, A. K. (2017). Patient hospital experience improved modestly, but no evidence Medicare incentives promoted meaningful gains. Health Affairs, 36(1), 133-140.
Acquadro C., Patrick D., Eremenco S., Martin M., Kuliś D., Correia H., Conway K. on behalf of the International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG) Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures Journal of Patient-Reported Outcomes 2018 2:8https://doi.org/10.1186/s41687-018-0035-8
Raleigh VS, Cream J, Murray R Are the NHS national outcomes frameworks past their sell-by date? BMJ Qual Saf 2018;27:166-170.
Desomer A., Van den Heede K., Triemstra M., Paget J., De Boer K., Kohn L., Cleemput I., L’utilisation des résultats et expériences rapportés par les patients (PROM/PREM) à des fins cliniques et de gestion KCE, Belgian Health Care Knowledge center, Centre Fedéral d’expertise des soins de santé,KCE report 303B, 2018
Slawomirski L., Fujisawa R., Klazinga N. Measuring patient safety, opening the black box, OECD 2018
Mougeot F., Occeli P., Buchet-Poyau K., Robelet M., Touzet S., Michel P. L’expérience patient en chirurgie : du travail du patient à la sécurité des soins Risques & Qualité – Volume XV – n°3 – Septembre 2018
Prinsen, C. A. C., Mokkink, L. B., Bouter, L. M., Alonso, J., Patrick, D. L., de Vet, H. C. W., & Terwee, C. B. (2018). COSMIN guideline for systematic reviews of patient-reported outcome measures. Quality of Life Research, 27(5), 1147-1157.
Kovic, B., Jin, X., Kennedy, S. A., Hylands, M., Pędziwiatr, M., Kuriyama, A., ... & Hong, B. Y. (2018). Evaluating Progression-Free Survival as a Surrogate Outcome for Health-Related Quality of Life in Oncology: A Systematic Review and Quantitative Analysis. JAMA internal medicine, 178(12), 1586-1596.
Poole K., Patient-Experience Data and Bias — What Ratings Don’t Tell Us, New England Journal Medicine, New Eng. J. Med. Feb 2018 : 801-02
Bjertnaes O, Iversen HH, Skyrud KD, et al The value of Facebook in nation-wide hospital quality assessment: a national mixed-methods study in Norway BMJ Quality & Safety Published Online First: 24 August 2019. doi: 10.1136/bmjqs-2019-009456